Open Access News

News from the open access movement


Tuesday, May 26, 2009

Extending the Bermuda Principles

Elizabeth Pennisi, Group Calls for Rapid Release of More Genomics Data, Science, May 22, 2009.  (Thanks to Garrett Eastman.)  Accessible only to subscribers.  Excerpt:

In 1996, at a meeting in Bermuda, researchers participating in the Human Genome Project opened the floodgates of DNA data by agreeing to release sequence information daily into a public database....In 2003, the genome-sequencing community reiterated this pledge at a follow-up meeting in Fort Lauderdale, Florida, and came up with guidelines on how prepublication data should be used.

Now pressure is mounting to extend the Bermuda Principles to a broad range of publicly funded projects that go beyond sequencing. They include whole-genome association studies, microarray surveys, epigenomics scans, protein structures, large-scale screening of small molecules for biological activity, and functional genomics data, only some of which are now covered by prepublication data-release policies....Last week, at the International Data Release Workshop held in Toronto, about 100 researchers, ethicists, and funding agency representatives began to hammer out guidelines for such efforts....

At the meeting, participants debated how to ensure that researchers who release data early get credit for the work and a chance to publish their analyses first....

[Another] issue is how to permit access to the data while protecting privacy — a task complicated by the fact that some databases contain information from multiple countries that vary in their patient-protection rules....

In the next several months, a final report —and, it is hoped, a publication on the topic— should help spell out how to extend prepublication data release beyond the sequencing community and further the discussion on controlled-access databases....

PS:  I can't find a web site for last week's data-release workshop in Toronto where the new guidelines were taking shape.  If anyone can help, please drop me a line and I'll update this post.