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Data-sharing advocate named Obama's health IT coordinator
HHS Names David Blumenthal As National Coordinator for Health Information Technology, press release, March 20, 2009.
Comment. What's the OA connection? In 2002, Blumenthal was co-author of a Journal of the American Medical Association paper titled Data Withholding in Academic Genetics, studying the data-sharing behavior of geneticists, followed by a Science column, The Selfish Gene: Data Sharing and Withholding in Academic Genetics. From the latter: A scientific world completely free of data withholding is probably unachievable and, indeed, may be undesirable. Some types of data withholding are necessary to ensure that investigators get the credit that they deserve and that partly motivates their effort. However, research and policy development should optimize scientific progress by identifying and combating the remediable causes of data withholding (such as those due to a lack of funds). Furthermore, when faced with decisions about sharing, scientists should consider seriously the broader impact of their decisions on the fundamental characteristics of the scientific enterprise and, when at all possible, err on the side of openness. Doing so may increase the likelihood that our system of science will function to its maximum capacity in the years to come.What's that mean for health IT? A key question for a national health IT infrastructure will involve what patient information to make available for medical research and how. (See e.g. our recent post on the topic.) Blumenthal's background suggests he sees a value in data sharing, which may influence the way he handles that question. |
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