The National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health has expanded its collection of genetic and clinical data first made freely available to researchers worldwide last year, to include clinical and genetic information collected from three asthma research networks. ...
SHARP [SHARe-Asthma Resource Project] includes data on 2,332 people with asthma and 805 families whose DNA was tested for 1 million genetic variations. In addition, clinical data gathered during asthma clinical trials, such as lung function, allergy status, and respiratory symptoms are included in the database. In this way, SHARP will permit researchers to relate study participants' genetic variations to their clinical and laboratory test results, thereby enabling future discoveries of links between genes and health for asthma and other airway diseases. To protect the confidentiality of study participants who agreed to share their medical data, the database does not include any personal information. ...
The three asthma clinical research networks providing data are the Childhood Asthma Management Program (CAMP), the Childhood Asthma Research and Education Network (CARE), and the Asthma Clinical Research Network (ACRN) — all funded by NHLBI. For more than 10 years, these networks have been major sources of information about the best practices in asthma care, translating and developing new knowledge for patients and physicians. ...
SHARP data is accessed through dbGaP, or the database of Genotypes and Phenotypes, a Web-based resource for archiving and distributing data from genome-wide association studies (GWAS). ...
Individual-level data can be used only by authorized investigators who meet requirements for access outlined in the NIH GWAS policy. Researchers are prohibited from redistributing data or trying to determine the identity of participants. ...
The open access movement:
Putting peer-reviewed scientific and scholarly literature
on the internet. Making it available free of charge and
free of most copyright and licensing restrictions.
Removing the barriers to serious research.
I recommend the OA tracking project (OATP) as the best way to stay on top of new OA developments. You can read the OATP feed on a blog-like web page or subscribe to it by RSS, email, or Twitter. You can also help build the feed by tagging new developments you encounter.
