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Sharing data on human subjects
Stuart Macdonald, Anonymity and consent, DataShare Blog, June 19, 2008.
On Tuesday 17th June I attended a RELU / UK Data Archive workshop at the University of Edinburgh [Managing and sharing research data (Edinburgh, June 17, 2008)] on managing and sharing research data. The workshop addressed issues surrounding confidential research information and personal data; developing consent agreements; anonymisation techniques and access regulations to enable use and sharing of research data. It was apparent that there were no real broadbrush solutions to anonymisation, consent, sharing issues in the social sciences and that each data set, each audience, each set of participants have to be looked at in turn to determine optimal effectiveness. |