Open Access News

News from the open access movement

Thursday, October 28, 2004

Genetic Alliance launches sample and data repository

Genetic Alliance has launched BioBank, a repository of biological samples and OA research data. From the press release (on the BioBank front page): "Seven genetic advocacy organizations established the Genetic Alliance BioBank™, a repository for the standardized collection, storage and distribution of biological samples and clinical data for research purposes. This novel, advocacy-owned and -managed repository focuses and accelerates research, providing infrastructure for many advocacy groups to build a valuable resource....Researchers who wish to receive samples submit an application to the disease-specific advocacy organization. These organizations release coded samples to the researcher and hold the key that connects specific samples to individuals, offering a unique opportunity to enable follow-up studies while protecting participant confidentiality."